Inefficiency in cancer care is a missed opportunity to do right by patients.
All.Can envisions a world in which patients are always at the heart of sustainable cancer care, and that means we must gain a better understanding of where patients consider their care is not focused on what matters to them. For this reason, in 2018, we launched the All.Can patient survey.
The survey asked patients about where they encountered inefficiency across the entire continuum of care, including diagnosis, treatment, aftercare and long-term support. It was open to current and former cancer patients, and could also be completed by carers on a patient’s behalf.
I think the psychological involvement part is forgotten. It is true that the main thing is to survive, but it is also necessary to feel accompanied and understood.Respondent from Spain
Individual versions of the survey were translated and disseminated in ten countries, with support from All.Can national initiatives and associated patient organisations. In addition, an international version of the survey was produced in English, French, German and Spanish, and made available for people whose country did not have a bespoke survey. For a full survey methodology and to view the individual questionnaires, see About the survey.
A total of 3,981 people responded to the All.Can patient survey. Their unique perspectives revealed a number of important gaps in cancer care. Patients live the reality of healthcare delivery, so their insights are both unique and valuable. If we want to be true to our aim of delivering care focused on what matters to patients, we must consider their perspectives alongside economic and clinical data, and incorporate them into proposed solutions, policies and system changes.
My cancer nurse was, and still is, the most amazing support we could have asked for. She was a wealth of knowledge and helped us out at any time of the day or night.Respondent from Australia
Findings of the All.Can patient survey will be published at the end of June 2019.
It is our hope that these findings will help to inform future cancer plans and investment decisions, to build truly patient-driven policies. Making these changes can make a real difference to people living with cancer, for generations to come.
I think we do not take the aftermath into account enough. Treatments… help heal cancer but destroy other things. Life becomes different after.Respondent from Belgium