All.Can Patient Survey

77 Patient insights on cancer care: opportunities for improving efficiency Swift, accurate and appropriately delivered diagnosis • 40% of respondents whose cancer was detected outside of a screening programme said that their cancer was diagnosed as something different – either initially or multiple times • 21% of respondents whose cancer was detected outside of a screening programme waited more than six months to be diagnosed with cancer Information, support and shared decision-making • 52% did not feel involved enough in deciding which treatment options were best for them • 38% were not given enough information (in a way they could understand) about their cancer care and treatment • 58% did not receive enough support to deal with ongoing symptoms and side effects – including beyond the active phase of their treatment • 48% did not receive enough information (in a way they could understand) about the signs and symptoms indicating that their cancer might be returning or getting worse • 40% were not given information about patient groups, charities and other organisations that might be able to support them Integrated multidisciplinary care • 67% reported that they needed some form of psychological support during/after their cancer care but, of those, 50% said it was not available • 34% said they were given too much medication and therefore had excess amounts left over at the end of their treatment The financial impact of cancer • 14% paid for some or all of their cancer care themselves (either because the care and treatment they wanted was not available via the National Health Service, or because they wanted to avoid delays in treatment) • 47% reported travel costs, 27% reported loss of employment, 12% reported loss of insurance and 5% reported childcare costs United Kingdom: key findings