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MEPs Against Cancer seminar: outcomes report

Improving outcomes, driving efficiency in cancer care: How do we learn from best practice?

Lieve Wierinck MEP speaking at the MEPs Against Cancer seminar

Lieve Wierinck MEP gives the opening remarks

To address growing concerns over the efficiency and sustainability of cancer care, Lieve Wierinck MEP – together with All.Can, the Association of European Cancer Leagues (ECL), the European CanCer Organisation (ECCO) and the European Cancer Patient Coalition (ECPC) – hosted a seminar with the MEPs Against Cancer (MAC) group at the European Parliament on 30 January 2018.

The seminar gathered over 50 representatives from a broad range of sectors. Stakeholders represented included: healthcare professionals, such as oncology specialist nurses and radiotherapy; patient advocacy groups; policymakers; and medical devices, digital health and pharmaceutical industry. This allowed for a multidisciplinary take on the issues under discussion.

Ms Wierinck, a cancer survivor and strong advocate for better cancer care across Europe, passed a resolution on the European Semester in February 2017 to include measures aimed at improving efficiency in cancer care at the EU level.

In her opening address, she said: ‘How do we define “efficient cancer care”? Focusing on outcomes that truly matter to patients is a good place to start.’

The seminar advanced this topic and focused on solutions that have been shown to improve efficiency across the entire care pathway – from small-scale efforts to system-wide changes – and encouraged policymakers to adopt such practices in their countries.

Probing the audience, Ms Wierinck said: ‘I challenge you to ask yourself: How can we achieve more efficient and sustainable cancer care together? And what is my individual role in helping to make this a reality?’

ECL President Dr Sakari Karjalainen introduced the work of the MAC group, which provides a platform for exchange of views with MEPs, other EU and national officials, experts, researchers and stakeholders in European cancer policy and cancer control. Croatian MEP Dubravka Šuica, a member of MAC and the European Parliament Committee on the Environment, Public Health and Food Safety (ENVI), was at the seminar to show her support.

Dubravka Šuica MEP and Lieve Wierinck MEP, members of MEPs Against Cancer

Dubravka Šuica MEP (left) and Lieve Wierinck MEP (right), members of MEPs Against Cancer

Dr Suzanne Wait, representing the All.Can Secretariat, outlined key issues facing policymakers. She highlighted the potential benefits of efficiency improvements – an estimated gain of two years’ life expectancy in Organisation for Economic Co-operation and Development (OECD) countries.

Dr Wait also emphasised the need to use data to guide decisions: ‘We need to have the courage to scrutinise what we are doing, and use data effectively to drive improvement.’

Lydia Makaroff, Director of the European Cancer Patient Coalition, speaking at the MEPs Against Cancer seminar

Lydia Makaroff gives examples of efficiency in cancer care

Lydia Makaroff, Director of ECPC, showcased some powerful solutions to efficiency challenges, drawing from examples of best practice from different countries and across the cancer pathway (see presentation).

She praised the work of Dutch Social Enterprise Jobs After Cancer, which supports cancer survivors who wish to return to work. The Netherlands is the first country with a governmental action plan to support cancer patients’ return to work. Ms Makaroff also highlighted ECPC’s work on the Patient Guide on Survivorship, in collaboration with the European Society for Medical Oncology (ESMO).

Dr Ian Banks, Chair of the Patient Advisory Committee at ECCO, introduced ECCO’s work on Access to Innovation, stating: ‘We need to be innovative about innovation. It does not simply mean developing treatments, but assessing the processes involved in cancer care. Patients must be involved in decisions regarding these processes.’

Dr Ian Banks of the European CanCer Organisation, speaking at the MEPs Against Cancer seminar

Dr Ian Banks discusses ECCO’s work on access to innovation

Following the keynote addresses, the topic of efficiency in cancer was brought to a panel of experts.

Dirk van den Steen of the European Commission’s health directorate (DG Santé) commented on existing disparities in cancer outcomes and inequalities in access to care across Europe. He noted the importance of presenting solutions to policymakers, rather than solely highlighting existing challenges.

Dr Banks commented on the importance of listening to the patient perspective. He reiterated that this is the starting point for improving efficiency and outcomes. This was a clear consensus of the seminar.

Amadou Diarra, Head of Global Policy, Advocacy and Government Affairs at Bristol-Myers Squibb, commented on the importance of industry’s involvement in multidisciplinary policy initiatives like All.Can, which help to identify and scale-up best practices globally to enable better outcomes for cancer patients across the world.

Pascal Garel, Chief Executive of the European Hospital and Healthcare Federation (HOPE), spoke of the importance of changing attitudes and gathering evidence to inform the way care is provided. Only open attitudes and respect for data can persuade individuals to promote real change in healthcare systems.

Rosna Mortuza, Director of Implementation at the International Consortium for Health Outcomes Measurement (ICHOM), summarised the importance of being able to compare outcomes in cancer care using common measures and to create incentives within the system: ‘We need to shift from volume to valueincentivise measurement around outcomes and achievement.’

This point was reinforced by Herb Riband, Vice President of International Policy and Government Affairs at Amgen, who said: ‘We need to act now to improve quality and efficiency if we want to think seriously about sustainability in cancer care.’

Ms Wierinck summarised discussions from the day. ‘We need to make sure our efforts are joined together – that we are efficient in our attempts to combat inefficiency,’ she said. ‘I believe that sometimes we do not all work together, and there are so many examples of good practice that could be replicated; so many good ideas that never make it across borders of Member States. The EU offers a huge opportunity for exchange and collaboration. We should take full advantage of this, and look for solutions together.’

A key takeaway from the day is that the challenge of providing sustainable cancer care cannot be achieved by a single stakeholder alone. As Ms Makaroff said: ‘Even the smallest of changes can make an important difference.’

Panel discussion at the MEPs Against Cancer seminar

Left to right: Pascal Garel, Amadou Diarra, Dirk van den Steen, Lydia Makaroff, Ian Banks, Herb Riband and Rosna Mortuza

The outcomes of the seminar have been published in the World Cancer Day edition of The Parliament Magazine.

Seminar documents to download

Presentation Agenda Speaker biographies

What’s next?

All.Can is determined to bring new data, best-practice examples and concrete solutions to European policymakers. Below is a summary of our upcoming plans and activities, and how to get involved:

  • We have launched the All.Can patient survey on waste and inefficiency in cancer care. Opportunities will be sought to share findings from the survey with MEPs and the European Commission.
  • The ICHOM–All.Can Value in Cancer Care project is calling for cancer centres to participate; see the call for applications.
  • Join us at the ECCO summit in Vienna from 7–9 September 2018, where there will be a session on improving efficiency in cancer care; see the preliminary programme.
  • Learn more about the work of All.Can by watching our animation and reading our annual report.
  • To find out whether your country has a national All.Can initiative, more information can be found on our All.Can around the world page.

If you are interested in finding out more about All.Can’s activities, you can find us on Twitter and Facebook, or email secretariat@all-can.org.