Patient story: ‘I feel that my initial diagnosis was handled badly’

This patient story shares the experience of a respondent who struggled to get the interventions she felt she needed.

Patient story: ‘I don’t know whether I’d have been given so much information if I hadn’t asked’

In this patient story, one respondent discusses the benefits of having a care team willing to answer the patient’s questions

Patient story: ‘Follow-up is difficult – and it lasts forever’

This patient story follows the experience of a woman still living with side effects many years after her cancer treatment.

Patient story: ‘It’s confusing to get mixed messages’

This patient story highlights how distressing a lack of clear information can be for people with cancer.

Patient story: ‘There needs to be more education on different types of cancer’

Isla lived with her symptoms for more than a decade before receiving a diagnosis.

Patient story: ‘There was no one there to reassure me’

This patient told us travelling a long distance to receive treatment was the worst part of his experience.

Patient story: ‘We should take charge of our health’

This patient story explores the experience of a respondent with a rare cancer, who felt there wasn’t enough information available.

Patient story: ‘I had to advocate for myself’

This respondent shares her story of adjusting to life with her diagnosis and the need to seek more information.

Patient story: ‘I was operated on within two weeks of my diagnosis’

This patient story details how one respondent was impressed with the speed of her surgery.